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The original item was published from 5/9/2018 10:02:25 AM to 5/9/2018 5:12:22 PM.

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Posted on: May 7, 2018

[ARCHIVED] SMITHTOWN’S ‘65 ROSES’ PROJECT FOR CYSTIC FIBROSIS AWARENESS

65roses.jpg

Help us reach the goal of planting 65 rose bushes by the month's end, for Cystic Fibrosis Awareness

WHAT: 65 Roses to be planted through the month of May in honor of Cystic Fibrosis awareness. Town officials will join with various community organizations with the common goal to plant 65 Rose bushes by the months end.

WHO: Elected Officials: Supervisor Ed Wehrheim, Town Council Members Tom McCarthy, Lynne Nowick, Lisa Inzerillo & Tom Lohmann, Town Clerk Vincent Puleo, Superintendent of Highways Robert Murphy and Receiver of Taxes Deanna Varricchio
Smithtown Family: Emily and James Cianci - the parents of Lucas, a four year old Smithtown resident who has cystic fibrosis. Lucas’ grandmother, Debbi Haupert has become a CF awareness advocate, who has helped to change the NY State Department of Health brochure language on newborn screening for Cystic Fibrosis.
Local Civic and Chamber of Commerce leaders: from Kings Park, Nesconset, Smithtown & St. James will also be in attendance.

WHEN: Thursday May 10th, 2018 at 2:30 PM.

WHERE: Town Hall located at 99 W Main Street in Smithtown

DETAILS: Lucas and his family will join elected officials and local community leaders in the kick off planting of rose bushes at Town Hall on Thursday Afternoon. The Town will present a surprise gift to Lucas after the photo opp and planting.
The ultimate purpose of this month long initiative is to inform the public about genetic screening prior to conception. Currently, screening for cystic fibrosis takes place in the first trimester of a pregnancy. One of every 29 people are unknown carriers of the genetic mutation which can result in the birth of a child with cystic fibrosis. By educating our community and encouraging prescreening, we have a real chance of stopping cystic fibrosis.

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